RARE Bear Newsletters
Real World Value: Advancing Payer Understanding of RWE in Rare Disease
Drug developers and regulators are expanding the use of real world evidence to design, test and review rare disease treatments. But market access challenges persist as payers in the U.S. and Europe continue to express doubts. A new survey sheds light on the perception gap. A striking life sciences trend …
Life in the Lab | Women in ScienceāSeptember 2019
Contributions to keep celebrating Whether they were the first to break down barriers or win a Nobel Prize, women have been essential to the advancement of science, technology, engineering, and mathematics. Their contributions have changed the world and itās only just beginning. Featured articles Championing women in science Meet some …
RARE Science Donated 200 RARE Bears to Local Kids with Physical Deformities
RARE Science, an all-volunteer San Diego nonprofit dedicated to accelerating diagnosis and therapeutic development for kids with rare disease, gifted 200 RARE Bears to local nonprofit Fresh Start Surgical Gifts through its RARE Bear Program created to raise awareness for childrenās rare disease. Fresh Start provides free-of-cost reconstructive surgery for …
RARE Science on UT Radio
Christina Waters, CEO and Founder of RARE Science, Inc., talks about her organizationās mission to help the millions of kids around the world that have been diagnosed with a rare disease. RARE Science unites rare families globally through its popular RARE Bear Program that builds awareness of particular rare diseases. …
