RARE Bear Newsletters
Making a deposit in the Bank: using stem cells
For Chris Waters, the motivation behind her move from big pharmaceutical companies and biotech to starting a non-profit organization focused on rare diseases in children is simple: âWhatâs most important is empowering patient families and helping them accelerate research to the clinical solutions they so urgently need for their child …
Bridging the divide: stem cell students helping families with rare diseases become partners in research.
Sometimes itâs the simplest things that make the biggest impact. For example, introducing a scientist to a patient can help them drive stem cell research forward faster than either one could do on their own. Want proof? This year, students in CIRMâs Bridges to Stem Cell Research and Therapy program …
RARE Bear Sew In
Spring into Action for Kids March 19, 2016 On this very special day, quilt guilds, sewing groups, and crafty individuals stitched up bears all over the world to âSpring into Actionâ for kids with rare diseases. Hundredsof bears were sewn and stuffed for our rare kids. RARE Science would like to thank each …
Southern California Becoming Hub for Rare Disease Research
February 29 only comes around every four years, but every year at the end of February, the rare disease community celebrates Rare Disease Day, a global effort to raise awareness of the prevalence of rare diseases and the challenges associated with diagnosing them and developing effective treatments. Read more here …
Sharing The Mission to Conquer Rare Diseases
Closer collaboration between pharmaceutical companies and patient organizations will accelerate drug development. At an ever-quickening pace, biopharmaceutical companies and patient advocacy groups are banding together to hasten development of new drugs for rare diseases. Advocacy groups rely on their partners for financial and scientific support while providing access to repositories …
UT San Diego Article
Article – San Diego Union Tribune – December 4, 2015 After a career in biotech and pharmaceuticals, Christina Waters turned her eye to rare childhood diseases. She founded the nonprofit RARE Science, Inc., which seeks to accelerate cures for these baffling and heartbreaking ailments. Read the complete article here …
