RARE Bear Newsletters
BEAR-NINA SEW-INS
This year we introduced you to Christina “Chris” Waters, the president, CEO and Founder of RARE Science. Chris is a delight to work with. She’s incredibly smart, full of energy, and passionate about the work her organization has been doing to find therapies and resources for children stricken with rare …
BERNINA of America Partners With RARE Science to Host RARE BEAR-NINA Events
Attendees will have the opportunity to make a RARE Bear that will be donated to children with rare diseases. Read More Here ..
Pushback on Rare Drug Prices: Not So Rare After All
There’s no doubt the “pricing crisis,” has taken a heavy toll on the reputation of the biopharmaceutical industry. The very industry that strives to improve and save peoples’ lives is at the center of a maelstrom of complaints about affordability and access to medicines.
Medical professionals provide improved patient care through AI
Computer-based systems that incorporate AI techniques are projected to have a dramatic impact in health care, helping physicians better diagnose and treat their patients.
Spring Into Action at the 2nd Annual RARE Bear Sew-In
Last year, the Spoonflower community came together for the first ever International RARE Bear Sew-in supporting RARE Science, and you blew us away with your generosity! We are excited to announce that on March 18th, Spoonflower will be hosting our 2nd annual International RARE Bear sew-in for the one-of-a-kind children …
Meeting the scientists who are turning their daughter’s cells into a research tool
There’s nothing like a face-to-face meeting to really get to know someone. And when the life of someone you love is in the hands of that person, then it’s a meeting that comes packed with emotion and importance. Read the full article here ..
