Rare Science is a California nonprofit corporation

Rare Disease World Sees New Pioneer

Her name is Christina Waters, and she is the founder and CEO of Rare Science, a California non-profit whose mission objective is to aid children and families of rare disease and to help find a diagnosis and treatment. She has now become part of the team at genomics firm Wuxi NextCODE as senior VP, and her focus […]

Founder of nonprofit lands at WuXi NextCODE for rare disease push

Christina Waters, Ph.D., is the founder and CEO of Rare Science, a California-based nonprofit that helps children with rare diseases and their families find diagnoses and treatments. She has now joined genomics firm WuXi NextCODE as senior VP, focusing on its rare disease programs. Her responsibilities will still include using networks and social media to […]

Patient Advocate Leads Drive to Add Rare Diseases to CIRM’s Stem Cell Bank

Oakland, CA – Christina Waters is a rare kind of person: creative, compassionate, and committed to creating change. Now she is using those rare talents to help children battling rare diseases. She is helping add blood and skin samples from these children to be turned into stem cells and used as a resource for researchers […]

Making a deposit in the Bank: using stem cells

For Chris Waters, the motivation behind her move from big pharmaceutical companies and biotech to starting a non-profit organization focused on rare diseases in children is simple: “What’s most important is empowering patient families and helping them accelerate research to the clinical solutions they so urgently need for their child ,” she says. Read More

Southern California Becoming Hub for Rare Disease Research

February 29 only comes around every four years, but every year at the end of February, the rare disease community celebrates Rare Disease Day, a global effort to raise awareness of the prevalence of rare diseases and the challenges associated with diagnosing them and developing effective treatments. Read more here [soliloquy id=”1852″]

RARE Science Brings New Hope To Patients With Rare, Neglected and Orphan Diseases

SAN DIEGO, Sept. 16, 2013 /PRNewswire-USNewswire/ — CEO and Founder of RARE Science, Dr. Christina Waters, announced today the launch of a new research based non-profit organization developing an integrated data system that serves the unmet medical needs of patients with rare, orphan and neglected diseases. RARE Science has attracted world renowned researchers from leading […]