1705, 2017

BEAR-NINA SEW-INS

May 17th, 2017|Comments Off on BEAR-NINA SEW-INS

This year we introduced you to Christina “Chris” Waters, the president, CEO and Founder of RARE Science. Chris is a delight to work with. She’s incredibly smart, full of energy, and passionate about the work [...]

103, 2017

BERNINA of America Partners With RARE Science to Host RARE BEAR-NINA Events

March 1st, 2017|Comments Off on BERNINA of America Partners With RARE Science to Host RARE BEAR-NINA Events

Attendees will have the opportunity to make a RARE Bear that will be donated to children with rare diseases. Read More Here ..

2802, 2017

Pushback on Rare Drug Prices: Not So Rare After All

February 28th, 2017|Comments Off on Pushback on Rare Drug Prices: Not So Rare After All

There’s no doubt the “pricing crisis,” has taken a heavy toll on the reputation of the biopharmaceutical industry. The very industry that strives to improve and save peoples’ lives is at the center of a [...]

2602, 2017

Medical professionals provide improved patient care through AI

February 26th, 2017|Comments Off on Medical professionals provide improved patient care through AI

Computer-based systems that incorporate AI techniques are projected to have a dramatic impact in health care, helping physicians better diagnose and treat their patients. Read More Here ..

2402, 2017

Spring Into Action at the 2nd Annual RARE Bear Sew-In

February 24th, 2017|Comments Off on Spring Into Action at the 2nd Annual RARE Bear Sew-In

Last year, the Spoonflower community came together for the first ever International RARE Bear Sew-in supporting RARE Science, and you blew us away with your generosity! We are excited to announce that on March 18th, [...]

311, 2016

Meeting the scientists who are turning their daughter’s cells into a research tool

November 3rd, 2016|Comments Off on Meeting the scientists who are turning their daughter’s cells into a research tool

There’s nothing like a face-to-face meeting to really get to know someone. And when the life of someone you love is in the hands of that person, then it’s a meeting that comes packed with [...]

311, 2016

Patient Advocate Leads Drive to Add Rare Diseases to CIRM’s Stem Cell Bank

November 3rd, 2016|Comments Off on Patient Advocate Leads Drive to Add Rare Diseases to CIRM’s Stem Cell Bank

Oakland, CA – Christina Waters is a rare kind of person: creative, compassionate, and committed to creating change. Now she is using those rare talents to help children battling rare diseases. She is helping add [...]

1710, 2016

Celebrity RARE Bear: Melody Crust

October 17th, 2016|Comments Off on Celebrity RARE Bear: Melody Crust

Meet "Artsy" by Melody Crust

1710, 2016

Celebrity RARE Bear: Tamara Leberer

October 17th, 2016|Comments Off on Celebrity RARE Bear: Tamara Leberer

Meet "Ruby Duby" by Tamara Leberer

1510, 2016

Celebrity RARE Bear: Rosie de Leon-McCrady

October 15th, 2016|Comments Off on Celebrity RARE Bear: Rosie de Leon-McCrady

Meet "Scarlett O'Beara" by Rosie de Leon-McCrady

1410, 2016

Celebrity RARE Bear: Ricky Tims

October 14th, 2016|Comments Off on Celebrity RARE Bear: Ricky Tims

Meet "The Huerfano Bear" by Ricky Tims

1310, 2016

Celebrity RARE Bear: Lea McComas

October 13th, 2016|Comments Off on Celebrity RARE Bear: Lea McComas

Meet "Ali Bear-ba" by Lea McComas

1310, 2016

Celebrity RARE Bear: Katie Fowler

October 13th, 2016|Comments Off on Celebrity RARE Bear: Katie Fowler

Meet "Sir Mandelbear the Perfectly Imperfect" by Katie Fowler

1110, 2016

Celebrity RARE Bear: Lyric Kinard

October 11th, 2016|Comments Off on Celebrity RARE Bear: Lyric Kinard

Celebrity RARE Bear: Lyric Kinard

1110, 2016

Celebrity RARE Bear: Karen Bernstein

October 11th, 2016|Comments Off on Celebrity RARE Bear: Karen Bernstein

Meet "Indian Princess" by Karen Bernstein

910, 2016

Celebrity RARE Bear: Rob Appell

October 9th, 2016|Comments Off on Celebrity RARE Bear: Rob Appell

Meet "MB" AKA "Man Bear" by Rob Appell

810, 2016

Celebrity RARE Bear: Wendy Grande

October 8th, 2016|Comments Off on Celebrity RARE Bear: Wendy Grande

Meet "The Boho Baby Boomer Bear" by Wendy Grande

710, 2016

Celebrity RARE Bear: Victoria Findlay Wolfe

October 7th, 2016|Comments Off on Celebrity RARE Bear: Victoria Findlay Wolfe

Meet "Bumble Bear" by Victoria Findlay Wolfe

610, 2016

Celebrity RARE Bear: Nancy Brown

October 6th, 2016|Comments Off on Celebrity RARE Bear: Nancy Brown

Meet "Yosemite Bear" by Nancy Brown

510, 2016

Celebrity RARE Bear: Alex Anderson

October 5th, 2016|Comments Off on Celebrity RARE Bear: Alex Anderson

Meet "Blossom" by Alex Anderson

410, 2016

Celebrity RARE Bear: Lola Jenkins

October 4th, 2016|Comments Off on Celebrity RARE Bear: Lola Jenkins

Meet "Lola Bear" by Lola Jenkins

310, 2016

Celebrity RARE Bear: Leslie Tucker Jenison

October 3rd, 2016|Comments Off on Celebrity RARE Bear: Leslie Tucker Jenison

Meet "Urban Grrrl" by Leslie Tucker Jenison

210, 2016

Celebrity RARE Bear: Sue Nickels

October 2nd, 2016|Comments Off on Celebrity RARE Bear: Sue Nickels

Meet "Gertie" the Green Bear by Sue Nickels

110, 2016

Celebrity RARE Bear: Gyleen Fitzgerald

October 1st, 2016|Comments Off on Celebrity RARE Bear: Gyleen Fitzgerald

Meet "Mr. Pineapple" by Gyleen Fitzgerald

3009, 2016

Celebrity RARE Bear: Youngmin Lee

September 30th, 2016|Comments Off on Celebrity RARE Bear: Youngmin Lee

Meet "Bojagi Bear" by Youngmin Lee

2909, 2016

Celebrity RARE Bear: Allie Aller

September 29th, 2016|Comments Off on Celebrity RARE Bear: Allie Aller

Meet "Wooly Bear" by Allie Aller

2809, 2016

Celebrity RARE Bear: Jamie Fingal

September 28th, 2016|Comments Off on Celebrity RARE Bear: Jamie Fingal

Meet "Rebel For a Cause" by Jamie Fingal

2709, 2016

Celebrity RARE Bear: Becky Goldsmith

September 27th, 2016|Comments Off on Celebrity RARE Bear: Becky Goldsmith

Meet "Flower" by Becky Goldsmith

2609, 2016

Celebrity RARE Bear: Sue Bleiweiss

September 26th, 2016|Comments Off on Celebrity RARE Bear: Sue Bleiweiss

Celebrity RARE Bear: Sue Bleiweiss

2209, 2016

Support the Rare Bear Army !

September 22nd, 2016|Comments Off on Support the Rare Bear Army !

My name is Christina Waters and I am a medical geneticist. Through personal passion and commitment to health and wellness of children, I started a volunteer based non-profit called RARE Science which has an innovative, laser [...]

1509, 2016

Making a deposit in the Bank: using stem cells

September 15th, 2016|Comments Off on Making a deposit in the Bank: using stem cells

For Chris Waters, the motivation behind her move from big pharmaceutical companies and biotech to starting a non-profit organization focused on rare diseases in children is simple: “What’s most important is empowering patient families and [...]

1209, 2016

Bridging the divide: stem cell students helping families with rare diseases become partners in research.

September 12th, 2016|Comments Off on Bridging the divide: stem cell students helping families with rare diseases become partners in research.

Sometimes it’s the simplest things that make the biggest impact. For example, introducing a scientist to a patient can help them drive stem cell research forward faster than either one could do on their own. [...]

1903, 2016

RARE Bear Sew In

March 19th, 2016|Comments Off on RARE Bear Sew In

 Spring into Action for Kids March 19, 2016 On this very special day, quilt guilds, sewing groups, and crafty individuals stitched up bears all over the world to “Spring into Action” for kids with rare diseases. Hundredsof [...]

2902, 2016

Southern California Becoming Hub for Rare Disease Research

February 29th, 2016|Comments Off on Southern California Becoming Hub for Rare Disease Research

February 29 only comes around every four years, but every year at the end of February, the rare disease community celebrates Rare Disease Day, a global effort to raise awareness of the prevalence of rare [...]

502, 2016

Sharing The Mission to Conquer Rare Diseases

February 5th, 2016|Comments Off on Sharing The Mission to Conquer Rare Diseases

Closer collaboration between pharmaceutical companies and patient organizations will accelerate drug development. At an ever-quickening pace, biopharmaceutical companies and patient advocacy groups are banding together to hasten development of new drugs for rare diseases. Advocacy [...]

712, 2015

UT San Diego Article

December 7th, 2015|Comments Off on UT San Diego Article

Article - San Diego Union Tribune - December 4, 2015 After a career in biotech and pharmaceuticals, Christina Waters turned her eye to rare childhood diseases. She founded the nonprofit RARE Science, Inc., which seeks [...]

712, 2015

UT San Diego Interview

December 7th, 2015|Comments Off on UT San Diego Interview

Dr. Christina Waters, President & CEO of RARE Science, Inc., discusses her organization’s mission to accelerate finding cures for children with rare diseases. Dr. Waters chats about the critical need for the services offered by [...]

1206, 2015

Repurposing Drugs to Discover New Treatments

June 12th, 2015|Comments Off on Repurposing Drugs to Discover New Treatments

From Science Friday ... Could approved drugs be repurposed to discover new treatments for chronic and rare diseases? http://s3.amazonaws.com/scifri-segments/scifri201506125.mp3

1609, 2013

RARE Science Brings New Hope To Patients With Rare, Neglected and Orphan Diseases

September 16th, 2013|Comments Off on RARE Science Brings New Hope To Patients With Rare, Neglected and Orphan Diseases

SAN DIEGO, Sept. 16, 2013 /PRNewswire-USNewswire/ -- CEO and Founder of RARE Science, Dr. Christina Waters, announced today the launch of a new research based non-profit organization developing an integrated data system that serves the [...]